She has an ultra-rare disease. Now this N.S. girl will be one of the first to test a possible cure | Unpublished
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Publication Date: August 4, 2026 - 05:00

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She has an ultra-rare disease. Now this N.S. girl will be one of the first to test a possible cure

August 4, 2026

Harper Tanton will be the fourth child in the world to participate in the clinical trial for kids who have CTNNB1 syndrome. She largely depends on a wheelchair and has developmental and speech delays.



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